The screen may be directly facing them or at an angle. Yeah, yeah. Somehow, I walked from the sofa up to the bathroom and told my partner. Last updated July 2017. You could see her face, and the major aspect that was, that was the indication of what was wrong was the thickening at the back of the neck in this instance, which, when you're looking at a fetus is, you know, sort of half a centimetre thicker or not is completely immaterial to me, and would look like a completely normal neck, but from the point of view of the consultant was severely abnormal. Previous scans in this pregnancy and with my first child had been fun - a chance to see the baby wriggling around and perhaps find out its sex. Still, the consultant thought things would be OK. No one else ever met the object of my grief. The consultant showed us the letter with our result on and, yes, there were the words "Down's syndrome". It was horrible. Within it are a number of recommendations for the communication of findings from ultrasounds. . Some people we talked to had not had a 18-20-week scan, either because their babies' abnormalities had been detected by earlier . I was becoming numb to the whole process. Some hospitals do offer earlier anomaly scans of the baby, but they will not show as much detail as scans performed between 18 and 20weeks. Many people were deeply affected by their experiences of the 20-week and subsequent specialist scans. It can be such a shock so do whatever you need to feel better. But before he could speak, he, too, had broken down. A black and white picture of your baby will then be seen on the ultrasound screen. I was saving my child from pain and suffering. My mum arrived early to look after our son, and my partner and I got a cab to the hospital. 18-20 week scans provide clinicians with more information than earlier scans because by18 weeks a healthy baby should be larger and better developed. It was the end of January, very end - about the 29th - I'd gone into, I'd gone into 5 months by then. I can't remember the exact words but she said, 'There might be some fatal problems with your baby'. So choroid plexus cysts on their own, no problem, but if there's something else wrong, then that's a problem. The people who did know what was going on seemed far too sure that we were doing the right thing, that there was really no choice to be made. Next most likely (but actually in the minority) they identify something which whilst not 100% healthy is treatable. (See. Laura miscarried her twin babies in February. Try to relax and take it easy. Did you, how did that scan make you feel? It was far too much power; neither of us wanted it. A company limited by guarantee registered in England and Wales company number 3266897. I was then told yet again bad news. The "why me?" She brought up a picture of the heart on the screen. Never lacking a sense of the dramatic, it felt as if we shared the responsibility for the terrible, dirty act that we had committed. So obviously quite relaxed. Others, including those who had been given leaflets to read about the scan beforehand as well as some who were health professionals, said that they had been nave about the 20-week scan. Bad news at 20 week scan | Mumsnet In the case of a suspected abnormality, women should be seen for a second opinion by an expert in fetal ultrasound, such as a fetal medicine specialist. He bluntly told me, he wasn't interested in whatever was seen before, he was only going to go by what he saw that day. Most scans are carried out by specially trained staff called sonographers. For example, the babys brain, kidneys, internal organs or bones may not have developed properly. I agreed to an internal scan as the sonographer said we could get a better picture of what was happening. Thanks girls, it's amazing how protected our babies are in there isn't it?! All my plans were beginning to fall down. To help us improve GOV.UK, wed like to know more about your visit today. I wasn't ready to make a decision straight away, and I was told I could call them in the morning. As you felt that, you know, it was probably going to show lots of problems and it just wasn't what we wanted, but at the same time we needed to sort of see it and, we needed to prove it I suppose. But it was very evident. And it turned out the baby's heart wasn't forming properly, the chambers weren't forming properly. You've had, you've had your Down's Syndrome check and that's okay. Possibly with hindsight we could have been more worried about it, but was probably a good thing we weren't, because we weren't worried about anything basically. Within two days I was waiting in my local EPU unit for further tests. So instead, I was advised to go home and let nature take its course. She describes having to make a momentous decision very quickly, and the ferment of relief, guilt and grief that followed, Original reporting and incisive analysis, direct from the Guardian every morning. He suggested he perform an amniocentesis immediately, to rule out any chromosomal problems. And I'd been on the internet looking up all sorts of things and everything was so negative, it was very depressing, because I thought, 'Well, maybe they've made a mistake, or maybe it's something they can fix, I don't know'. Actually you could tell from the brain development as he scanned up through the chambers of the brain, that one quarter of the brain, one chamber was not evident. I was becoming numb to the whole process. This article was amended on 24 November 2015 to anonymise the writer. And then, so I went to my next scan, which was the 20-week abnormality scan, and we took our first child with us, I think he was 17 months old at the time. So when that happened to us I really didn't worry, I thought, you know, it was literally the baby was in awkward position, they couldn't see the heart and that was why. Many parents were shocked by findings from the 20-week and later scans. Only this time, no cry came. Others said they were shocked because all the early diagnostic tests (e.g. We left the hospital a couple of hours later. I thought I was going to burst into tears. This publication is available at https://www.gov.uk/government/publications/screening-tests-for-you-and-your-baby/11-physical-conditions-20-week-scan. Mumsnet carries some affiliate marketing links, so if you buy something through our posts, we may get a small share of the sale (more details here), tbh, they never give you good news at scans. At which point they turned round and said, 'Well, there is something very seriously wrong with the baby, we don't know exactly what, but you do need to have a more in-depth scan at your regional hospital to find out the detail'. I know its hard- but i really wouldnt worry about it too much as the worry will stress you and your body out. It's a bit at the back of the brain and - no I can't remember what it is - it's called, it's something that's called Dandy-Walker mal, The Royal College of Obstetricians and Gynaecologists (RCOG) have produced a report on Termination of Pregnancy for Fetal Abnormality in England, Scotland and Wales (May 2010). I couldn't bring myself to push. I think what everyone is saying is that most likely outcome is that there are no problems at all. For instance a couple who knew their baby was 'on the small size' were told he was fine at the 18-20 week scan, but discovered at 32 weeks that he had microcephaly. I had never imagined having an amniocentesis. The hardest thing I have ever done. For five months my body had known there was something wrong, yet I had felt fantastic. She asked me how far gone I thought we were, and if I could have been mistaken. So she said, 'Come back on Monday. And as soon as she said those words, both of us were like, 'Well what's wrong?'. If this happens, you will be offered one further scan by 23 weeks of pregnancy. He sounded like a wild animal in pain, deep pain. I had to wait for a doctor to explain the situation. Baby loss stories It was over. Why me and not you, you bastard? Wishing to be anywhere, but here being told the same agonising truth over and . And it all seemed so near at hand, you know, 31, 30 weeks, you feel like you're nearly, you're on the home stretch. I tried to show him the notes and the photos. Eventually she got the measurements she wanted. To comment on this thread you need to create a Mumsnet account. Sometimes doctors will wait to give the baby more time to develop and carry out repeat scans - this had confused several parents we talked to who had gone for repeat scans not knowing that the baby might have a problem. So had to come back in a week's time for a scan, which again is quite a common thing I found out. Where we were living then at the time you only had a scan at 20 weeks. My wife had been very, very healthy, more healthy than the first pregnancy, and of course was shattered by the fact that the news, the news was appalling, very serious faces. Some people had underestimated how serious any abnormality found at this stage could be for the baby. It felt as if we'd gone underground, that we were part of the criminal fraternity. I couldn't really believe what they were saying. 15/02/2014 08:02. There was complete silence during the scan. Away you go'. Some of the other conditions, such as heart defects, are more difficult to see. It's quite common, perhaps 1 in 10 they find these, and within a few weeks they disappear. This scan takes place between 18 weeks and 20 weeks 6 days of pregnancy and is commonly called the 20-week scan. I didn't want to go through anymore scans. Sometimes a post mortem was needed to confirm the 20-week diagnosis to see if the baby had inherited a genetic problem (such as Fowler syndrome - see 'Resources'). No one else attended and we didn't have a service. So he went out for a walk. I faced another internal scan where I began to feel helpless and alone. I had no idea if we were doing the "right" thing. No one else but my partner saw how similar he was to our son. To comment on this thread you need to create a Mumsnet account. I had my little leaflet, printed off leaflet about choroid plexus cysts. Some people had underestimated how serious any abnormality found at this stage could be for the baby. And for that whole time, my partner and I were both crying uncontrollably. With my oldest it turns out she has a minor thing that affects 1 in 1000 of the population and wont harm her at all it's just "there" and with my second the issue turned out to be nothing. The doctor wanted to do another blood test to confirm a significant drop in my hormone levels. I was told this was common as my body and hormones still thought I was pregnant. He looked excited. And that was extraordinary to see the detail that that could offer. Surely he couldn't have missed anything else that is so serious x. Not a good sign in a hospital consulting room. If you are not sure, you can contact them and ask. Many described how sonographers and doctors were very restrained and didn't speak at all until they had analysed all the baby's details. I mean the lady who was scanning was very quiet for a long time. Find more information and details of support groups on NHS.UK. I didn't want to be convincing him to agree with me. The milk came and stayed for what seemed like for ever. It went from bad, to worse, to worse, to dire, then to better. Enough for two weeks after he had been cremated. Please note that the opinions expressed by users in Tommys Book of #misCOURAGE are solely those of the user, who is unlikely to have had medical training. Let a mum know you're thinking of them send one of our personalised Mother's Day cards today, Home For example, some babies have a condition called open spina bifida, which affects the spinal cord. All pregnant women should be given the booklet by their midwife or GP Screening tests for you and your baby by Public Health England, which gives detailed information about the types of scan offered and what they are looking for. Can you describe the difference between the scan at this later stage in a pregnancy? So I trusted him. So we'd gone through the Down's syndrome or worse scare, we'd had conversations about what we would do, if it was confirmed that it was Down's syndrome or another syndrome, another sort of chromosome abnormality. I broke down and started hitting my disgusting body that had done this. I had to wait yet another sleepless night. I felt sad, but not the complete devastation of the last scan as they had seen a change of some sort. And so, yeah we got to, carried on with the pregnancy, kept seeing the consultant, kept sitting in the waiting room outside, because there was a terribly long waiting time sometimes, depending on what time you had the appointment. Our week-by-week PREGNANCY emails are a must for parents-to-be. It is essential that all practitioners performing fetal anomaly ultrasound screening should be trained to communicate abnormal findings to women, as such information is likely to have significant emotional impact. And I, my husband and I both ran our own business at the time so we were desperate to get back and do some work, and things were going really well, so.. The gel makes sure there is good contact between the probe and your skin. But they didn't. Any delay in receiving more information about the abnormality and its implications will be distressing for women and this should be acknowledged. But worse was to come. It's part of our family. But it is a soft marker for Edwards' syndrome. Which she reassured us that she'd be absolutely fine, this was a one-off. You do not have to have the scan. Saturday came. Another sick joke. So I sort of went home quite, fairly kind of happy and I, at, at this point I hadn't any idea things could go wrong anyway. Eventually, the midwife said to us very sweetly, "I think we should deliver the baby now." By this time, we were tired. It will take only 2 minutes to fill in. . My baby might have Down's syndrome. And that was Monday afternoon. I had a horrible feeling of relief. That they could have spotted something, or not? Baby loss support And so this one can't tell you anything, it's pictures, you're going, you're going to see your baby, you're going to get pictures. The pain was bearable but uncomfortable, the hospital rang me a few days later and asked me how I was. It was probably all right but hadn't had any fluid in it at the moment. I took my vitamins, stuck to the healthy diet and put on a brave face. Maybe our son would have overcome his problems, survived his illnesses, led a happy life. We talked about the different sorts of pain relief I could have and I opted for a morphine drip, which I could control. Picture every packed football staduim up and down the country - all healthy pregnancies and births. He felt doing more blood tests would only cause me more discomfort and false hope. The doctor told me he was 98% sure this was a failing twin pregnancy. News stories, speeches, letters and notices, Reports, analysis and official statistics, Data, Freedom of Information releases and corporate reports. It is impossible to escape them and each one underlines your loss. And that was a terrible moment to be sort of hanging on, waiting. Dont worry we wont send you spam or share your email address with anyone. It was exactly like the labour I had with my first child. Though the 18-20 week scan can detect when certain parts of the baby's body have grown abnormally, it may not be possible for clinicians to identify why it has happened or make a firm diagnosis based on the scan alone. Went off for the 20-week scan, which you didn't, you weren't there, were you, for the first scan? No, we really didn't, with hindsight we probably should have, but not at all, it never occurred to us to be worried about it. I think I don't everything just seems a real blur because it was, it was such a strange experience. Immediately I knew what decision we should take. I get terribly irritated by my close friends and family. Those two weeks were agonising for us both. Though the 18-20 week scan can detect when certain parts of the baby's body have grown abnormally, it may not be possible for clinicians to identify why it has happened or make a firm diagnosis based on the scan alone. You may need to have a full bladder when you come for the appointment. Then I picked myself up. BabyCenter. And in this instance the scan was very evident that there was something very seriously wrong. Some stories I hear are amazing! Scans cannot find all conditions. Several parents said they would have preferred being told something, even it was vague. I tried not to sit still for too long, because then I became too aware of the little thing inside me. She advised I be referred to the EPU to be assessed. I ran into the bedroom to tell Sam, who was ecstatic. I had to take a tablet there and then, under the supervision of a nurse, to end the pregnancy. Bad news at 20 week scan, please help. | Mumsnet [Husband] couldn't make it. hi ladies. We, I was with my mum, and they scanned and found choroid plexus cysts on the brain, which is just a mark, it's a marker on the brain, it's a, what they call a 'soft marker'. As I was called for my scan I was nervous and emotional. It felt like a lifetime to reach our 12-week-scan. He started to scan me with a cold expression, then told me, "it didn't look good" and that "my womb looked raggedy". Entering the labour ward, I waited for someone to say, "Go home, you are 16 weeks too early." We need to have your opinion'. And it was Christmas Eve and at the time I didn't think, the sonographer did spend a little bit of time scanning us and queried my dates several times and then explained that she couldn't quite see the baby's heart properly and would we come back in a couple of days? We've joined the grown-ups and we both feel very different. Being deeply unhappy and kind to others at the same time is nigh on impossible. She wanted to have a look at the skull, which was the main thing, but she couldn't see it from where the baby was. And you could see, where you should have a picture of 4 chambers, you could really see 2. That he - I think I was 21 weeks and 3 days, and he was coming up at 19 weeks and 4 days, or something like that. Again, we weren't understood. In order for the sonographer to get good images of your baby, the scan is carried out in a dimly lit room. Parents get a chance to emotionally adapt to news and plan. And even at that early stage it was beginning to sink in that there was something really not right. My belly was growing and I was feeling great. And I am slowly coming to terms with what has happened. We were convinced everything would be OK. That was the first time I had heard him cry. Mumsnet carries some affiliate marketing links, so if you buy something through our posts, we may get a small share of the sale (more details here). But the consultant had found more spots on the heart and the measurements were the same. I wrote a few things down last night when we were trying to go over things, just to remind myself. During the examination, sonographers need to keep the screen in a position that gives them a good view of your baby. My partner was away working and was waiting to hear whether he was having a son or daughter. So, in the end, we said we would arrange our own funeral. 20-week ultrasound (anomaly scan) - BabyCenter Australia Instead, I had to raise a glass of water to my mouth, take a swig and swallow the tablet. I give pregnant women dirty looks. I didn't have a clue. I tried to keep positive. Tears started to roll down my face. Well send you a link to a feedback form. My partner watched the baby come out, and for a split second I saw a look of joy on his face. The week that followed was an agonising wait. I think at that time she had come to terms better with the fact that this baby was going to be terminated, and I don't think I was quite there. And having read, since read my information on Edwards' syndrome, a good 85 per cent have problems with the heart. I didn't sleep that night I don't think. We'd just spent some time away on a, on a summer holiday and come back expecting to have this scan and be told, 'All fine. I was told that while bad news at the 12 w scan is often of the life or death kind, bad news at the 20 week scan is often of the 'needs an operation in childhood' or 'needs to wear a brace for a year' kind. unfortunately the 20 week anomaly scan can pick up serious issues, hearing heart beats at midwife appointment doesn't let us know what's going on inside the body in detail. 'I was having nightmares and panic attacks. We saw the consultant, who was reassuring, saying that he would rescan me and was sure everything would be fine. The nursery I had selected for our two-year-old son; my maternity leave; the bunk beds; the summer holiday suitable for a newborn baby. Some say this estimate is really below the reality, and the out-of-pocket average costs are higher. Anyway we went in for the meeting with the consultant on this particular time, and we'd got to, I was 30 weeks pregnant by then. Fine, go on my own. At this point it wasn't looking great. But everything seemed fine and we'd been sitting waiting to see the consultant, and I'd had an examination on the bed. Hugely upset that to think that the baby was so poorly. It seemed a very arbitrary system, and so you quite often sat outside in the waiting room for a couple of hours before you actually got to see the consultant, which was, seemed you know, I kind of remember thinking before we went in to see him on the particular day when we found out there was a problem, 'Why are we sitting here?
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